Discussion – Unintended Consequences of Informed Consent

NSG/426: Integrity In Practice: Ethic And Legal Considerations

Wk 4 Discussion – Unintended Consequences of Informed Consent

Instructions: Reply substantively to at least 2 of your classmates. Be constructive and professional in your responses. Response ranges from 150 to 300 words per student.

*Aimee L.

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Breast cancer research has been at the forefront of research topics for many years. Studies blocked by informed consent can be a hindrance to those awaiting advancement in treatment. Some treatments not approved by the Federal Drug Administration can be beneficial for those undergoing breast cancer treatment. regulations make those treatments not available to patients. With the seriousness and increasing occurrence of breast cancer, I feel that those involved with experimental studies would want to make their successful treatment plans available to all even if their signed informed consent said otherwise. “Since the Nuremberg Code and the first Declaration of Helsinki, globally there has been increasing adoption and adherence to procedures for ensuring that human subjects in research are as well informed as possible of the study’s reasons and risks and voluntarily consent to serve as subject. To do otherwise is essentially viewed as violation of the human research subject’s legal and moral rights” (Miller, L.F., 2020) It is unfortunate that this legally this information can not be used to benefit others. Hopefully, some change can come of this in our future.

Miller, L. F. (2020). Responsible research for the construction of maximally humanlike automata: the paradox of unattainable informed consent. Ethics & Information Technology, 22(4), 297–305. https://doi.org/10.1007/s10676-017-9427-3

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